The long awaited Cystinosis Advocate Newsletter is here. Choose from research updates, advocacy efforts, family stories, events, cystinosis support...
read moreBy taking part in Rare Disease Day you help provide a greater understanding and acceptance of cystinosis and living...
read moreThe Cystinosis Research Network announces the expansion of our Board with two new Directors. Their experience, perspectives and dedication...
read moreA global initiative has been announced: the Cystinosis Warrior Impact Program. Our goal is to support, help or find...
read moreOn May 7, 2022 we celebrate the 5th Annual Cystinosis Awareness Day. This is an opportunity to educate the...
read moreGail Potts and her South Carolina team are back at it! After a successful inaugural event last summer, Gail...
read moreDiet and exercise will be the next topics of conversation during the Cystinosis Sessions quarterly Zoom call. Join our...
read moreFebruary 28th marks the 12th annual Rare Disease Day (RDD). Observed on the rarest day of the year, the...
read moreJoin The Hilltop and Dicks Family for a fundraiser to benefit sweet Elle. Elle was diagnosed with cystinosis and...
read moreThe Dicks Family sat down for a candid conversation with Daniel Levine from Global Genes. During the latest podcast,...
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