CRN

2nd Annual SC Golf Fundraiser

Gail Potts and her South Carolina team are back at it! After a successful inaugural event last summer, Gail...

On May 7, 2022 we celebrate the 5th Annual Cystinosis Awareness Day. This is an opportunity to educate the...

In honor of 5th Annual Cystinosis Awareness Day a new global initiative has been announced: the Cystinosis Warrior Impact...

Diet and exercise will be the next topics of conversation during the Cystinosis Sessions quarterly Zoom call. Join our...

February 28th marks the 12th annual Rare Disease Day (RDD). Observed on the rarest day of the year, the...

Join The Hilltop and Dicks Family for a fundraiser to benefit sweet Elle. Elle was diagnosed with cystinosis and...

The Dicks Family sat down for a candid conversation with Daniel Levine from Global Genes. During the latest podcast,...

This summer we reached a milestone – over $40,000 in scholarships awarded since our program’s inception. Congratulations to the...

Saturday, September 11th at 4:00pm ET, join the Adult Leadership Advisory Board (ALAB) for a Zoom discussion. TOPICS The...

Members of the CRN’s Scientific Review Board have compiled articles for those interested in learning more about an additional...