CRN

How A Rare Diagnosis Impacts A Family

The Dicks Family sat down for a candid conversation with Daniel Levine from Global Genes. During the latest podcast,...

This summer we reached a milestone – over $40,000 in scholarships awarded since our program’s inception. Congratulations to the...

Saturday, September 11th at 4:00pm ET, join the Adult Leadership Advisory Board (ALAB) for a Zoom discussion. TOPICS The...

Members of the CRN’s Scientific Review Board have compiled articles for those interested in learning more about an additional...

The Myrtle Beach National Golf Club and Gail Potts are hosting a golf tournament benefitting the Cystinosis Research Network...

The Adult Leadership Advisory Board (ALAB) invites you to join the conversation on August 7th at 4pm ET. The...

Today (July 16) the first-ever, 100% online CRN Family Conference begins. Registration is still open so we invite you...

The CRN 2021 Family Conference is July 16 – July 18. In response to the COVID-19 pandemic, we’ve decided...

On March 8, 2021, the Cystinosis Research Network announced Tim Wyman as the new interim President. The position was...

The goal of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on...