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CRN Golf Tournament: Myrtle Beach

The Myrtle Beach National Golf Club and Gail Potts are hosting a golf tournament benefitting the Cystinosis Research Network...

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Going Virtual: CRN Family Conference Kickoff

Today (July 16) the first-ever, 100% online CRN Family Conference begins. Registration is still open so we invite you...

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2021 Summer Conference Announcement

The CRN 2021 Family Conference is July 16 – July 18. In response to the COVID-19 pandemic, we’ve decided...

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The CRN Welcomes Tim Wyman

On March 8, 2021, the Cystinosis Research Network announced Tim Wyman as the new interim President. The position was...

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Rare Disease Day 2021

The goal of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on...

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CRN + PCs for People Offer Free Computers, Internet Access

Now more than ever, our world relies on technology to stay connected. The Cystinosis Research Network (CRN) has partnered...

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Open Registration – 2020 Cystinosis Virtual Meetups

We are going virtual! The CRN is introducing a series of virtual meetups taking place this fall. Available to...

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Cystinosis Face Mask Fundraiser

On Thursday, July 2nd, the CRN announced a face mask fundraiser to help create awareness, bring in donations and...

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Ringing in the Future: 2019 Conference Highlights

People from around the world joined the CRN Family Conference this summer to help “Ring in the Future”. Here...

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