Hello! My name is Gracie, I’m 21 years old, and I have a rare disease called cystinosis. Cystinosis is...
read moreOn May 7, 2023 the cystinosis community will come together in honor of Cystinosis Awareness Day (CAD). Now in...
read moreA global initiative has been announced: the Cystinosis Warrior Impact Program. Our goal is to support, help or find...
read moreOn May 7, 2022 we celebrate the 5th Annual Cystinosis Awareness Day. This is an opportunity to educate the...
read moreIn the late 1970’s, a hospitalization led to a cystinosis diagnosis which was uncommon at the time. Karen, and...
read moreIn honor of Cystinosis Awareness Day – May 7 – Leadiant Biosciences is commemorating this event with a letter...
read moreWelcome to the 4th Annual Cystinosis Awareness Day! Started in 2018, Cystinosis Awareness Day was created to bring attention...
read moreAdvocating for rare disease sometimes feels like fighting an uphill battle. Living with cystinosis means you are 1 in...
read moreCystinosis Awareness Day is recognized as May 7th for the most commonly linked cystinosis mutation, the 57-kb deletion. This...
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