Join us on and leading up to May 7th to promote cystinosis awareness, education and fundraising efforts. More information...
read moreResearchers, clinicians, industry and advocacy representatives attending CRN Nashville have been invited to exhibit research findings, treatment breakthroughs, and...
read moreMen 18+ living with nephropathic cystinosis are currently being recruited for a research study, Clinical and Molecular Assessments of...
read moreThe Cystinosis Research Network announces the expansion of our Board with two new Directors. Their experience, perspectives and dedication...
read moreA global initiative has been announced: the Cystinosis Warrior Impact Program. Our goal is to support, help or find...
read moreOn May 7, 2022 we celebrate the 5th Annual Cystinosis Awareness Day. This is an opportunity to educate the...
read moreGail Potts and her South Carolina team are back at it! After a successful inaugural event last summer, Gail...
read moreDiet and exercise will be the next topics of conversation during the Cystinosis Sessions quarterly Zoom call. Join our...
read moreFebruary 28th marks the 12th annual Rare Disease Day (RDD). Observed on the rarest day of the year, the...
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