Tag: Cystinosis Research Network

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Seeking Volunteers for Male Fertility in Cystinosis Study

Men 18+ living with nephropathic cystinosis are currently being recruited for a research study, Clinical and Molecular Assessments of...

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CRN Welcomes New Board Members

The Cystinosis Research Network announces the expansion of our Board with two new Directors. Their experience, perspectives and dedication...

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Cystinosis Warrior Impact Program

In honor of 5th Annual Cystinosis Awareness Day a new global initiative has been announced: the Cystinosis Warrior Impact...

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How A Rare Diagnosis Impacts A Family

The Dicks Family sat down for a candid conversation with Daniel Levine from Global Genes. During the latest podcast,...

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Over $40k in Cystinosis Scholarships Awarded

This summer we reached a milestone – over $40,000 in scholarships awarded since our program’s inception. Congratulations to the...

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FDA Authorizes Additional COVID-19 Vaccine Dose for Certain Immunocompromised Individuals

Members of the CRN’s Scientific Review Board have compiled articles for those interested in learning more about an additional...

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New Slate Announced: CRN Board

The Cystinosis Research Network has announced new board member updates. At the last Board Meeting, the nominating committee proposed...

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An Open Letter to the Cystinosis Community

Interim CRN President, Tim Wyman, has written an open letter to the cystinosis community. You can read it here.

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2021 Summer Conference Announcement

The CRN 2021 Family Conference is July 16 – July 18. In response to the COVID-19 pandemic, we’ve decided...

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Joint Research Funding into the Molecular Causes of Infertility in Male Cystinosis Patients

Cystinosis Ireland and the CRN are delighted to announce  they will jointly fund research project entitled “Perturbations in the...

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