Tag: Cystinosis Research Network

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CRN Golf Tournament: Myrtle Beach

The Myrtle Beach National Golf Club is hosting a golf tournament benefitting the Cystinosis Research Network on Saturday, August...

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Rare Disease Day 2021

The goal of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on...

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Joint Research Funding into the Molecular Causes of Infertility in Male Cystinosis Patients

Cystinosis Ireland and the CRN are delighted to announce  they will jointly fund research project entitled “Perturbations in the...

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Now Available: CYSTARAN Town Hall Recording

On February 3, 2021, Leadiant and the Cystinosis Research Network held a Town Hall to address the CYSTARAN eye...

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CRN + PCs for People Offer Free Computers, Internet Access

Now more than ever, our world relies on technology to stay connected. The Cystinosis Research Network (CRN) has partnered...

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Open Registration – 2020 Cystinosis Virtual Meetups

We are going virtual! The CRN is introducing a series of virtual meetups taking place this fall. Available to...

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Survey: Impact of COVID-19 + Rare Diseases

The Rare Diseases Clinical Research Network (RDCRN) is hoping to learn how the COVID-19 pandemic impacts people who live...

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