Cystinosis Research Network

Cystinosis Sessions: August Video Call

The Adult Leadership Advisory Board (ALAB) invites you to join the conversation on August 7th at 4pm ET. The...

Interim CRN President, Tim Wyman, has written an open letter to the cystinosis community. You can read it here.

The CRN 2021 Family Conference is July 16 – July 18. In response to the COVID-19 pandemic, we’ve decided...

Cystinosis Ireland and the CRN are delighted to announce they will jointly fund research project entitled “Perturbations in the...

The Myrtle Beach National Golf Club and Gail Potts are hosting a golf tournament benefitting the Cystinosis Research Network...

The goal of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on...

Now more than ever, our world relies on technology to stay connected. The Cystinosis Research Network (CRN) has partnered...

We are going virtual! The CRN is introducing a series of virtual meetups taking place this fall. Available to...

The Rare Diseases Clinical Research Network (RDCRN) is hoping to learn how the COVID-19 pandemic impacts people who live...