cystinosis

Cystinosis Sessions: September Video Call

Saturday, September 11th at 4:00pm ET, join the Adult Leadership Advisory Board (ALAB) for a Zoom discussion. TOPICS The...

Members of the CRN’s Scientific Review Board have compiled articles for those interested in learning more about an additional...

In a quarterly update, AVROBIO announced: “Data from the patients dosed to date across three indications continue to...

The Adult Leadership Advisory Board (ALAB) is hosting a Zoom video call on July 10th at 4pm ET. TOPICS ...

The Adult Leadership Advisory Board (ALAB) is hosting a Zoom video call on June 5th at 4pm ET. The...

Please click here for the latest updates from Leadiant on the Cystadrops shortage. If you have further questions, please...

Interim CRN President, Tim Wyman, has written an open letter to the cystinosis community. You can read it here.

In the late 1970’s, a hospitalization led to a cystinosis diagnosis which was uncommon at the time. Karen, and...

In honor of Cystinosis Awareness Day – May 7 – Leadiant Biosciences is commemorating this event with a letter...

Welcome to the 4th Annual Cystinosis Awareness Day! Started in 2018, Cystinosis Awareness Day was created to bring attention...