November 17, 2020 – AVROBIO announced that data suggests functional and clinical improvements for the first cystinosis patient at...
read moreJoin the Adult Leadership Advisory Board (ALAB) for the Cystinosis Sessions video conference series – LIVE- on Saturday, November...
read moreLearn more about gene therapy as it relates to the cystinosis community. Dr. Paul Grimm from from Stanford University...
read moreLet’s have an open discussion on mental health and living with cystinosis. Everyone within the community is invited! Licensed...
read moreJoin hosts from the Adult Leadership Advisory Board (ALAB) for the Cystinosis Sessions video conference series – LIVE- on...
read moreIn April, the Cystinosis Network Europe adapted their international conference to the restrictions set forth by COVID-19. The result...
read moreLearn more about the fundamentals of cystinosis during our Cystinosis Basics video meetup. Dr. Larry Greenbaum, Emory School of...
read moreBeginning September 15, 2020, Recordati Rare Diseases announced the availability of CYSTADROPS across the United States. CYSTADROPS are a...
read moreCaregivers of children with cystinosis under 18 years old are invited. Join us for a video conference to connect...
read moreYouth to Adult Transition Part 2- Q &A Panel with Adults Living with Cystinosis Part two of the youth...
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