This summer, Cystinosis Network Europe (CNE) will host an International Conference July 7-10 in Leuven, Belgium. The conference will...
read moreAdvoSci Health hosted a Cystinosis Case Competition this fall semester. Students were tasked with learning foundational information about cystinosis...
read moreVaincre les Maladies Lysosomales has announced funding for a new research project benefitting the cystinosis community: Characterization of Respiratory...
read moreCystinosis researcher, Ana Francisco and her team at Montefiore Medical Center/Einstein College of Medicine are exploring disease impact on...
read moreAVROBIO is looking for perspectives from the cystinosis community. They will be conducting a small focus group to help...
read moreThe Dicks Family sat down for a candid conversation with Daniel Levine from Global Genes. During the latest podcast,...
read moreSaturday, October 2nd at 4:00pm ET, join the Adult Leadership Advisory Board (ALAB) for a Zoom discussion. Chat with...
read moreSaturday, September 11th at 4:00pm ET, join the Adult Leadership Advisory Board (ALAB) for a Zoom discussion. TOPICS The...
read moreMembers of the CRN’s Scientific Review Board have compiled articles for those interested in learning more about an additional...
read moreIn a quarterly update, AVROBIO announced: “Data from the patients dosed to date across three indications continue to...
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