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Miles for Moose

Support the first annual Miles for Moose fundraiser.

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Cystinosis Face Mask Fundraiser

On Thursday, July 2nd, the CRN announced a face mask fundraiser to help create awareness, bring in donations and...

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57 Miles for Cystinosis

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A Tale of Two Kidneys by Jana Healy

The person I’m most grateful for is my sister Jennifer. Six and a half years ago my labs were...

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Giving Tuesday

The CRN is a proud participant in Giving Tuesday – a global movement encouraging people to “do good.” This...

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A Family of Great Givers by Cheryl Simoens

The great givers in my life are my family. I was born with a rare kidney disease known within...

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Strangers Brought Together by Destiny by Sara Healy

What started as a cystinosis awareness effort turns into a life-changing encounter. It all started with Jana (my twin...

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Seed-Balls for Cystinosis

Over the last few years, Carter’s family has taken a strong interest in monarch butterflies. Post diagnosis, Grandmom (Carrie)...

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2nd Annual 57 Miles for Cystinosis

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