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2nd Annual SC Golf Fundraiser

Gail Potts and her South Carolina team are back at it! After a successful inaugural event last summer, Gail...

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Cystinosis Face Mask Fundraiser

On Thursday, July 2nd, the CRN announced a face mask fundraiser to help create awareness, bring in donations and...

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57 Miles for Cystinosis

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Seed-Balls for Cystinosis

Over the last few years, Carter’s family has taken a strong interest in monarch butterflies. Post diagnosis, Grandmom (Carrie)...

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Inspirational Stories

Our community is small but mighty! Hear about our triumphs.

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Your contribution funds research for improved treatments, and ultimately, a cure for cystinosis.

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