education

Cystinosis Mexico Hosts 2nd Medical Training

San Miguel de Allende, Mexico was the setting for Cystinosis Mexico’s training course August 26 – 28. Nephrologists, ophthalmologists...

Interim CRN President, Tim Wyman, has written an open letter to the cystinosis community. You can read it here.

We are going virtual! The CRN is introducing a series of virtual meetups taking place this fall. Available to...

On Thursday, July 2nd, the CRN announced a face mask fundraiser to help create awareness, bring in donations and...

The person I’m most grateful for is my sister Jennifer. Six and a half years ago my labs were...

I first heard of cystinosis in 2016. It was Spring, I felt. Or it should have been—life metamorphoses are...

What started as a cystinosis awareness effort turns into a life-changing encounter. It all started with Jana (my twin...

Global Genes 2019 RARE Patient Advocacy Summit was attended by members of our cystinosis community. Natasha Faisca and Clinton...

People from around the world joined the CRN Family Conference this summer to help “Ring in the Future”. Here...