education

Cystinosis Community Takes on Cincinnati, OH

Join us as we celebrate the 7th Annual Cystinosis Awareness Day with an electrifying regional meetup, courtesy of the...

Recordati Rare Diseases announced the launch of a new educational website: www.cystinosisinfocus.com. The site aims to help families manage...

See you in Cincinnati, Ohio! On May 4th, we are gathering for an in-person meet-up at the Cincinnati Marriott...

Join us on and leading up to May 7th to promote cystinosis awareness, education and fundraising efforts. Our 7th...

On May 7, 2023 the cystinosis community will come together in honor of Cystinosis Awareness Day (CAD). Now in...

San Miguel de Allende, Mexico was the setting for Cystinosis Mexico’s training course August 26 – 28. Nephrologists, ophthalmologists...

The CRN Family Conference is back…and in-person for the summer of 2023. Join us July 13 – July 15...

On May 7, 2022 we celebrate the 5th Annual Cystinosis Awareness Day. This is an opportunity to educate the...

Gail Potts and her South Carolina team are back at it! After a successful inaugural event last summer, Gail...

Interim CRN President, Tim Wyman, has written an open letter to the cystinosis community. You can read it here.