On May 7, 2023 the cystinosis community will come together in honor of Cystinosis Awareness Day (CAD). Now in...
read moreSan Miguel de Allende, Mexico was the setting for Cystinosis Mexico’s training course August 26 – 28. Nephrologists, ophthalmologists...
read moreThe CRN Family Conference is back…and in-person for the summer of 2023. Join us July 13 – July 15...
read moreOn May 7, 2022 we celebrate the 5th Annual Cystinosis Awareness Day. This is an opportunity to educate the...
read moreGail Potts and her South Carolina team are back at it! After a successful inaugural event last summer, Gail...
read moreInterim CRN President, Tim Wyman, has written an open letter to the cystinosis community. You can read it here.
read moreThe Pediatric Academic Societies (PAS) connects thousands of pediatricians and other health care providers worldwide. This international gathering, delivered...
read moreWe are going virtual! The CRN is introducing a series of virtual meetups taking place this fall. Available to...
read moreOn Thursday, July 2nd, the CRN announced a face mask fundraiser to help create awareness, bring in donations and...
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