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Tag: Emily Mello

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Family Planning with Cystinosis

  The Adult Leadership Advisory Board introduces the topic of Family Planning with Cystinosis to their monthly meetup series....

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Rare Disease Day: My Rare Journey

In recognition of Rare Disease Day 2023, the Adult Leadership Advisory Board compiled thoughts from a few cystinosis warriors....

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Inspirational Stories

Our community is small but mighty! Hear about our triumphs.

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