English▼
The Myrtle Beach National Golf Club is hosting a golf tournament benefitting the Cystinosis Research Network on Saturday, August...
read moreCaregivers of children with cystinosis under 18 years old are invited. Join us for a video conference to connect...
read moreCystinosis Awareness Day is recognized as May 7th for the most commonly linked cystinosis mutation, the 57-kb deletion. This...
read moreFollowing much consideration, Cystinosis Network Europe (CNE) and Cystinosis Ireland have decided to cancel the in-person International Cystinosis Conference...
read moreOn April 25th, a free online conference is being provided by Cystinosis Network Europe (CNE) and Cystinosis Ireland. The...
read moreThe person I’m most grateful for is my sister Jennifer. Six and a half years ago my labs were...
read moreThe CRN is a proud participant in Giving Tuesday – a global movement encouraging people to “do good.” This...
read moreI first heard of cystinosis in 2016. It was Spring, I felt. Or it should have been—life metamorphoses are...
read moreSubscribe today to receive updates on the latest news and events.
