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Caregivers of children with cystinosis under 18 years old are invited. Join us for a video conference to connect...
read moreCystinosis Awareness Day is recognized as May 7th for the most commonly linked cystinosis mutation, the 57-kb deletion. This...
read moreFollowing much consideration, Cystinosis Network Europe (CNE) and Cystinosis Ireland have decided to cancel the in-person International Cystinosis Conference...
read moreOn April 25th, a free online conference is being provided by Cystinosis Network Europe (CNE) and Cystinosis Ireland. The...
read moreThe person I’m most grateful for is my sister Jennifer. Six and a half years ago my labs were...
read moreThe CRN is a proud participant in Giving Tuesday – a global movement encouraging people to “do good.” This...
read moreI first heard of cystinosis in 2016. It was Spring, I felt. Or it should have been—life metamorphoses are...
read moreCRN will join the American Society for Nephrology (ASN) and more than 13,000 other kidney professionals from across the...
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