English▼
Cystinosis Network Europe (CNE) is an umbrella grouping of patient support, advocacy and research organizations in Europe and beyond....
read moreFebruary 28th marks the 12th annual Rare Disease Day (RDD). Observed on the rarest day of the year, the...
read moreThe Myrtle Beach National Golf Club and Gail Potts are hosting a golf tournament benefitting the Cystinosis Research Network...
read moreSupport the first annual Miles for Moose fundraiser.
read moreCaregivers of children with cystinosis under 18 years old are invited. Join us for a video conference to connect...
read moreCystinosis Awareness Day is recognized as May 7th for the most commonly linked cystinosis mutation, the 57-kb deletion. This...
read moreFollowing much consideration, Cystinosis Network Europe (CNE) and Cystinosis Ireland have decided to cancel the in-person International Cystinosis Conference...
read moreOn April 25th, a free online conference is being provided by Cystinosis Network Europe (CNE) and Cystinosis Ireland. The...
read moreThe person I’m most grateful for is my sister Jennifer. Six and a half years ago my labs were...
read moreSubscribe today to receive updates on the latest news and events.
