Tag: fundraiser

Search
Generic filters
Exact matches only

CRN Golf Tournament: Myrtle Beach

The Myrtle Beach National Golf Club is hosting a golf tournament benefitting the Cystinosis Research Network on Saturday, August...

read more

Miles for Moose

Support the first annual Miles for Moose fundraiser.

read more

Rare Disease Day 2021

The goal of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on...

read more

LLLFF Virtual 5K

On the one year anniversary of Laura McGinnis’ passing, the Live Like Laura Fun Fund (LLLFF) was launched. Laura lived life...

read more

Cystinosis Face Mask Fundraiser

On Thursday, July 2nd, the CRN announced a face mask fundraiser to help create awareness, bring in donations and...

read more

Cystinosis Awareness Day – 3rd Annual

Cystinosis Awareness Day is recognized as May 7th for the most commonly linked cystinosis mutation, the 57-kb deletion. This...

read more

57 Miles for Cystinosis

read more

A Tale of Two Kidneys by Jana Healy

The person I’m most grateful for is my sister Jennifer. Six and a half years ago my labs were...

read more

Giving Tuesday

The CRN is a proud participant in Giving Tuesday – a global movement encouraging people to “do good.” This...

read more

My Definition of Cystinosis By Ana Francisco

I first heard of cystinosis in 2016. It was Spring, I felt. Or it should have been—life metamorphoses are...

read more