fundraiser

Cystinosis Face Mask Fundraiser

On Thursday, July 2nd, the CRN announced a face mask fundraiser to help create awareness, bring in donations and...

The person I’m most grateful for is my sister Jennifer. Six and a half years ago my labs were...

I first heard of cystinosis in 2016. It was Spring, I felt. Or it should have been—life metamorphoses are...

Life with a chronic disease can be stressful to say the least. My most frustrating moments are when I’m...

They say sometimes it takes a village to help raise children, for us that village included two beautiful women....

My daughter, Deanna Lynn, was diagnosed with cystinosis 46 years ago in Houston, TX. At that time I did...