#GivingTuesday

Each Year is a Gift by Jenn Loglisci

I do not have one story or just one person I can point out as a #GreatGiver. I am...

The person I’m most grateful for is my sister Jennifer. Six and a half years ago my labs were...

I first heard of cystinosis in 2016. It was Spring, I felt. Or it should have been—life metamorphoses are...

Life with a chronic disease can be stressful to say the least. My most frustrating moments are when I’m...

They say sometimes it takes a village to help raise children, for us that village included two beautiful women....

My daughter, Deanna Lynn, was diagnosed with cystinosis 46 years ago in Houston, TX. At that time I did...

The great givers in my life are my family. I was born with a rare kidney disease known within...

What started as a cystinosis awareness effort turns into a life-changing encounter. It all started with Jana (my twin...

The CRN is a proud participant in Giving Tuesday – a global movement encouraging people to “do good.” This...