February 28, 2023 is Rare Disease Day. A movement created by Eurordis, Rare Disease Day unites an international community...
read moreThe Dicks Family sat down for a candid conversation with Daniel Levine from Global Genes. During the latest podcast,...
read moreGlobal Genes 2019 RARE Patient Advocacy Summit was attended by members of our cystinosis community. Natasha Faisca and Clinton...
read moreOn behalf of the cystinosis community, CRN advocates will attend this rare disease summit to absorb information on the...
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