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Pet Fundraiser Benefitting Adults with Cystinosis

The Adult Leadership Advisory Board (ALAB) created custom designed bandanas for your furry friends. Your donation provides support for...

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CRN Golf Tournament: Myrtle Beach

The Myrtle Beach National Golf Club and Gail Potts are hosting a golf tournament benefitting the Cystinosis Research Network...

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57 Miles for Cystinosis

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Seed-Balls for Cystinosis

Over the last few years, Carter’s family has taken a strong interest in monarch butterflies. Post diagnosis, Grandmom (Carrie)...

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