The person I’m most grateful for is my sister Jennifer. Six and a half years ago my labs were...
read moreLife with a chronic disease can be stressful to say the least. My most frustrating moments are when I’m...
read moreMy daughter, Deanna Lynn, was diagnosed with cystinosis 46 years ago in Houston, TX. At that time I did...
read moreThe great givers in my life are my family. I was born with a rare kidney disease known within...
read moreWhat started as a cystinosis awareness effort turns into a life-changing encounter. It all started with Jana (my twin...
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