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CRN + PCs for People Offer Free Computers, Internet Access

Now more than ever, our world relies on technology to stay connected. The Cystinosis Research Network (CRN) has partnered...

Let’s have an open discussion on mental health and living with cystinosis. Everyone within the community is invited! Licensed...

I do not have one story or just one person I can point out as a #GreatGiver. I am...

Life with a chronic disease can be stressful to say the least. My most frustrating moments are when I’m...

They say sometimes it takes a village to help raise children, for us that village included two beautiful women....

My daughter, Deanna Lynn, was diagnosed with cystinosis 46 years ago in Houston, TX. At that time I did...

The great givers in my life are my family. I was born with a rare kidney disease known within...

What started as a cystinosis awareness effort turns into a life-changing encounter. It all started with Jana (my twin...

The CRN is a proud participant in Giving Tuesday – a global movement encouraging people to “do good.” This...

Support the first annual Miles for Moose fundraiser.