Hello! My name is Gracie, I’m 21 years old, and I have a rare disease called cystinosis. Cystinosis is...
In the late 1970’s, a hospitalization led to a cystinosis diagnosis which was uncommon at the time. Karen, and...
Let us help connect you with other individuals/families near you.
Our community is small but mighty! Hear about our triumphs.
Your contribution funds research for improved treatments, and ultimately, a cure for cystinosis.