The CRN Family Conference is back…and in-person for the summer of 2023. Join us July 13 – July 15...
read moreOn May 7, 2022 we celebrate the 5th Annual Cystinosis Awareness Day. This is an opportunity to educate the...
read moreSaturday, September 11th at 4:00pm ET, join the Adult Leadership Advisory Board (ALAB) for a Zoom discussion. TOPICS The...
read moreThe Adult Leadership Advisory Board (ALAB) invites you to join the conversation on August 7th at 4pm ET. The...
read moreToday (July 16) the first-ever, 100% online CRN Family Conference begins. Registration is still open so we invite you...
read moreThe CRN 2021 Family Conference is July 16 – July 18. In response to the COVID-19 pandemic, we’ve decided...
read moreLearn more about gene therapy as it relates to the cystinosis community. Dr. Paul Grimm from from Stanford University...
read moreWe are going virtual! The CRN is introducing a series of virtual meetups taking place this fall. Available to...
read moreThe CRN 2021 Family Conference will be hosted in Nashville, Tennessee (U.S). Please visit our events page for details...
read moreWelcome to our podcast series – Cystinosis Rare: A Journey into the Unknown. Lead by the Adult Leadership Advisory...
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