learn

Each Year is a Gift by Jenn Loglisci

I do not have one story or just one person I can point out as a #GreatGiver. I am...

I first heard of cystinosis in 2016. It was Spring, I felt. Or it should have been—life metamorphoses are...

Global Genes 2019 RARE Patient Advocacy Summit was attended by members of our cystinosis community. Natasha Faisca and Clinton...

People from around the world joined the CRN Family Conference this summer to help “Ring in the Future”. Here...

On behalf of the cystinosis community, CRN advocates will attend this rare disease summit to absorb information on the...