Tag: May 7

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My Cystinosis Story by Gracie Smith

Hello! My name is Gracie, I’m 21 years old, and I have a rare disease called cystinosis. Cystinosis is...

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Cystinosis Warrior Impact Program

A global initiative has been announced: the Cystinosis Warrior Impact Program.   Our goal is to support, help or find...

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