en English▼
X
ar Arabicbn Bengalizh-CN Chinese (Simplified)cs Czechda Danishnl Dutchen Englishtl Filipinofi Finnishfr Frenchde Germanel Greekht Haitian Creolehaw Hawaiianiw Hebrewhi Hindihu Hungarianid Indonesianit Italianja Japaneseko Koreanla Latinlt Lithuanianno Norwegianfa Persianpl Polishpt Portuguesepa Punjabiru Russiansr Serbiansk Slovaksl Slovenianes Spanishsw Swahilisv Swedishth Thaitr Turkishuk Ukrainianvi Vietnamesecy Welsh
For HCPs Donate

Tag: participation

Search
Generic filters
Exact matches only

Study Participants Needed: The Effect of Exercise on Muscle Dysfunction in Cystinosis

Clinical researchers from the Stanford Neuromuscular department are looking for individuals who have been diagnosed with Cystinosis Myopathy, to...

read more

Survey: Impact of COVID-19 + Rare Diseases

The Rare Diseases Clinical Research Network (RDCRN) is hoping to learn how the COVID-19 pandemic impacts people who live...

read more

Cystinosis Perspective: RARE Patient Advocacy Summit

Global Genes 2019 RARE Patient Advocacy Summit was attended by members of our cystinosis community. Natasha Faisca and Clinton...

read more

Support

Let us help connect you with other individuals/families near you.

Learn More

News & Events

See what’s going on in the cystinosis community.

Read More

Donate

Your contribution funds research for improved treatments, and ultimately, a cure for cystinosis.

Donate