Tag: patient-reported outcomes

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Informational Q&A: Cystinosis QoL Study

We will host an informational session on the CRN funded study “Development of a patient-reported outcome to measure the...

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Recruiting for Health-Related Quality of Life Study

Cystinosis patients and caregivers are invited to participate in a study focused on measuring health-related quality of life (HrQoL)....

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