research

An Open Letter to the Cystinosis Community

Interim CRN President, Tim Wyman, has written an open letter to the cystinosis community. You can read it here.

Cystinosis Ireland and the CRN are delighted to announce they will jointly fund research project entitled “Perturbations in the...

In Honor of Laura’s 35th Birthday and Rare Disease Day. An article by Marybeth Krummenacker I was trying to...

Thanks in part to volunteers at both the 2017 and 2019 CRN Family Conferences, this study was able to...

In April, the Cystinosis Network Europe adapted their international conference to the restrictions set forth by COVID-19. The result...

We are going virtual! The CRN is introducing a series of virtual meetups taking place this fall. Available to...

Partnering with RDMD, this program aims to accelerate cystinosis research to ultimately improve treatment options. We welcome you to...

We are pleased to announce a collaboration between the Cystinosis Research Network (CRN) and Cystinosis Ireland to fund a...

AVROBIO announces the second patient with cystinosis has been dosed in the company’s AVR-RD-04 investigational gene therapy Phase 1/2...

The CRN 2021 Family Conference will be hosted in Nashville, Tennessee (U.S). Please visit our events page for details...