Vaincre les Maladies Lysosomales has announced funding for a new research project benefitting the cystinosis community: Characterization of Respiratory...
read moreCystinosis researcher, Ana Francisco and her team at Montefiore Medical Center/Einstein College of Medicine are exploring disease impact on...
read moreAVROBIO is looking for perspectives from the cystinosis community. They will be conducting a small focus group to help...
read moreInterim CRN President, Tim Wyman, has written an open letter to the cystinosis community. You can read it here.
read moreCystinosis Ireland and the CRN are delighted to announce they will jointly fund research project entitled “Perturbations in the...
read moreIn Honor of Laura’s 35th Birthday and Rare Disease Day. An article by Marybeth Krummenacker I was trying to...
read moreThanks in part to volunteers at both the 2017 and 2019 CRN Family Conferences, this study was able to...
read moreIn April, the Cystinosis Network Europe adapted their international conference to the restrictions set forth by COVID-19. The result...
read moreWe are going virtual! The CRN is introducing a series of virtual meetups taking place this fall. Available to...
read morePartnering with RDMD, this program aims to accelerate cystinosis research to ultimately improve treatment options. We welcome you to...
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