en English▼
X
ar Arabicbn Bengalizh-CN Chinese (Simplified)cs Czechda Danishnl Dutchen Englishtl Filipinofi Finnishfr Frenchde Germanel Greekht Haitian Creolehaw Hawaiianiw Hebrewhi Hindihu Hungarianid Indonesianit Italianja Japaneseko Koreanla Latinlt Lithuanianno Norwegianfa Persianpl Polishpt Portuguesepa Punjabiru Russiansr Serbiansk Slovaksl Slovenianes Spanishsw Swahilisv Swedishth Thaitr Turkishuk Ukrainianvi Vietnamesecy Welsh
For HCPs Donate

Tag: share

Search
Generic filters
Exact matches only

Cystinosis Sessions: July Video Call

Founding ALAB member, Brian Ensor shares his first-hand experiences with the AstraZeneca Vaccination Study. Join the Zoom call Saturday,...

read more

5th Annual Cystinosis Awareness Day

On May 7, 2022 we celebrate the 5th Annual Cystinosis Awareness Day. This is an opportunity to educate the...

read more

Cystinosis Awareness Day – Discovering a New Type of the Disease

In the late 1970’s, a hospitalization led to a cystinosis diagnosis which was uncommon at the time. Karen, and...

read more

Cystinosis & Mental Health: Virtual Meetup

Let’s have an open discussion on mental health and living with cystinosis. Everyone within the community is invited! Licensed...

read more

Global Genes: Rare Patient Advocacy Summit

On behalf of the cystinosis community, CRN advocates will attend this rare disease summit to absorb information on the...

read more

Support

Let us help connect you with other individuals/families near you.

Learn More

Inspirational Stories

Our community is small but mighty! Hear about our triumphs.

Read More

Donate

Your contribution funds research for improved treatments, and ultimately, a cure for cystinosis.

Donate