Founding ALAB member, Brian Ensor shares his first-hand experiences with the AstraZeneca Vaccination Study. Join the Zoom call Saturday,...
read moreOn May 7, 2022 we celebrate the 5th Annual Cystinosis Awareness Day. This is an opportunity to educate the...
read moreIn the late 1970’s, a hospitalization led to a cystinosis diagnosis which was uncommon at the time. Karen, and...
read moreLet’s have an open discussion on mental health and living with cystinosis. Everyone within the community is invited! Licensed...
read moreOn behalf of the cystinosis community, CRN advocates will attend this rare disease summit to absorb information on the...
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