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Adults with Cystinosis Lead Video Conference Series

In the third episode of “Cystinosis Sessions,” a live video conference series created by adults living with cystinosis, topics...

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Cystinosis Sessions: Overcoming Limitations & Goal Setting

The third live video conference takes place June 6 at 12:00 pm ET. The Adult Leadership Advisory Board (adults...

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Inspirational Stories

Our community is small but mighty! Hear about our triumphs.

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Your contribution funds research for improved treatments, and ultimately, a cure for cystinosis.

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