We will host an informational session on the CRN funded study “Development of a patient-reported outcome to measure the...
read moreCystinosis patients and caregivers are invited to participate in a study focused on measuring health-related quality of life (HrQoL)....
read moreMen 18+ living with nephropathic cystinosis are currently being recruited for a research study, Clinical and Molecular Assessments of...
read moreClinical researchers from the Stanford Neuromuscular department are looking for individuals who have been diagnosed with Cystinosis Myopathy, to...
read moreCould newborn screening provide a turning point in the natural history of cystinosis? Review the latest publication “Newborn Screening: Review of...
read moreCystinosis researcher, Ana Francisco and her team at Montefiore Medical Center/Einstein College of Medicine are exploring disease impact on...
read moreAVROBIO is looking for perspectives from the cystinosis community. They will be conducting a small focus group to help...
read moreCystinosis Ireland and the CRN are delighted to announce they will jointly fund research project entitled “Perturbations in the...
read moreThanks in part to volunteers at both the 2017 and 2019 CRN Family Conferences, this study was able to...
read moreWe are pleased to announce a collaboration between the Cystinosis Research Network (CRN) and Cystinosis Ireland to fund a...
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