Recordati Rare Diseases Inc., the makers of CYSTADROPS, launched a website to support the launch of the eye treatment...
read moreJoin hosts from the Adult Leadership Advisory Board (ALAB) for the Cystinosis Sessions video conference series – LIVE- on...
read moreIn April, the Cystinosis Network Europe adapted their international conference to the restrictions set forth by COVID-19. The result...
read moreLearn more about the fundamentals of cystinosis during our Cystinosis Basics video meetup. Dr. Larry Greenbaum, Emory School of...
read moreAdvocating for rare disease sometimes feels like fighting an uphill battle. Living with cystinosis means you are 1 in...
read moreCystinosis Awareness Day is recognized as May 7th for the most commonly linked cystinosis mutation, the 57-kb deletion. This...
read moreThe CRN 2021 Family Conference will be hosted in Nashville, Tennessee (U.S). Please visit our events page for details...
read moreHow will you honor the “rarest” day of the year? Check out our cystinosis awareness giveaway. Sign up and...
read moreWhen it comes to Elle and cystinosis, “We continue to take each day dose by dose.” Hear more from...
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