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Cystinosis Warrior Impact Program

In honor of 5th Annual Cystinosis Awareness Day a new global initiative has been announced: the Cystinosis Warrior Impact...

Interim CRN President, Tim Wyman, has written an open letter to the cystinosis community. You can read it here.

Angel Aid is currently providing free trauma-less needle poke wellness kits for the cystinosis community. Their “Buzzy” kits were...

Recordati Rare Diseases Inc., the makers of CYSTADROPS, launched a website to support the launch of the eye treatment...

In April, the Cystinosis Network Europe adapted their international conference to the restrictions set forth by COVID-19. The result...

Advocating for rare disease sometimes feels like fighting an uphill battle. Living with cystinosis means you are 1 in...

The CRN 2021 Family Conference will be hosted in Nashville, Tennessee (U.S). Please visit our events page for details...

How will you honor the “rarest” day of the year? Check out our cystinosis awareness giveaway. Sign up and...

When it comes to Elle and cystinosis, “We continue to take each day dose by dose.” Hear more from...

I do not have one story or just one person I can point out as a #GreatGiver. I am...