In honor of 5th Annual Cystinosis Awareness Day a new global initiative has been announced: the Cystinosis Warrior Impact...
read moreInterim CRN President, Tim Wyman, has written an open letter to the cystinosis community. You can read it here.
read moreAngel Aid is currently providing free trauma-less needle poke wellness kits for the cystinosis community. Their “Buzzy” kits were...
read moreRecordati Rare Diseases Inc., the makers of CYSTADROPS, launched a website to support the launch of the eye treatment...
read moreJoin hosts from the Adult Leadership Advisory Board (ALAB) for the Cystinosis Sessions video conference series – LIVE- on...
read moreIn April, the Cystinosis Network Europe adapted their international conference to the restrictions set forth by COVID-19. The result...
read moreLearn more about the fundamentals of cystinosis during our Cystinosis Basics video meetup. Dr. Larry Greenbaum, Emory School of...
read moreAdvocating for rare disease sometimes feels like fighting an uphill battle. Living with cystinosis means you are 1 in...
read moreCystinosis Awareness Day is recognized as May 7th for the most commonly linked cystinosis mutation, the 57-kb deletion. This...
read moreSubscribe today to receive updates on the latest news and events.