support

Cystinosis Basics: Virtual Meetups

Learn more about the fundamentals of cystinosis during our Cystinosis Basics video meetup. Dr. Larry Greenbaum, Emory School of...

Advocating for rare disease sometimes feels like fighting an uphill battle. Living with cystinosis means you are 1 in...

Cystinosis Awareness Day is recognized as May 7th for the most commonly linked cystinosis mutation, the 57-kb deletion. This...

The CRN 2021 Family Conference will be hosted in Nashville, Tennessee (U.S). Please visit our events page for details...

How will you honor the “rarest” day of the year? Check out our cystinosis awareness giveaway. Sign up and...

When it comes to Elle and cystinosis, “We continue to take each day dose by dose.” Hear more from...

I do not have one story or just one person I can point out as a #GreatGiver. I am...

The person I’m most grateful for is my sister Jennifer. Six and a half years ago my labs were...

The CRN is a proud participant in Giving Tuesday – a global movement encouraging people to “do good.” This...