en English▼
X
ar Arabicbn Bengalizh-CN Chinese (Simplified)cs Czechda Danishnl Dutchen Englishtl Filipinofi Finnishfr Frenchde Germanel Greekht Haitian Creolehaw Hawaiianiw Hebrewhi Hindihu Hungarianid Indonesianit Italianja Japaneseko Koreanla Latinlt Lithuanianno Norwegianfa Persianpl Polishpt Portuguesepa Punjabiru Russiansr Serbiansk Slovaksl Slovenianes Spanishsw Swahilisv Swedishth Thaitr Turkishuk Ukrainianvi Vietnamesecy Welsh
For HCPs Donate

Tag: talk

Search
Generic filters
Exact matches only

Cystinosis Sessions: April Video Call

Cystinosis Sessions: April Video Call All are invited to join as the Adult Leadership Advisory Board hosts a live...

read more

Cystinosis Sessions: March Video Call

All are invited to join as the Adult Leadership Advisory Board hosts a live video call on Saturday, March...

read more

Cystinosis & Mental Health: Virtual Meetup

Let’s have an open discussion on mental health and living with cystinosis. Everyone within the community is invited! Licensed...

read more

Cystinosis Basics: Virtual Meetups

Learn more about the fundamentals of cystinosis during our Cystinosis Basics video meetup. Dr. Larry Greenbaum, Emory School of...

read more

Cystinosis Sessions: Mental Health

The forth live video conference hosted by the Adult Leadership Advisory Board (ALAB) will discuss Mental Health, Anxiety, Depression,...

read more

Cystinosis Sessions: Overcoming Limitations & Goal Setting

The third live video conference takes place June 6 at 12:00 pm ET. The Adult Leadership Advisory Board (adults...

read more

Live Video Conference: Dependence, Education & Employment

Join the LIVE video conference session on May 2nd!

read more

Support

Let us help connect you with other individuals/families near you.

Learn More

Inspirational Stories

Our community is small but mighty! Hear about our triumphs.

Read More

Donate

Your contribution funds research for improved treatments, and ultimately, a cure for cystinosis.

Donate