Tag: treatment

Generic filters
Exact matches only

Procysbi Announces Tear-Open Packets

Treatment announcement: Horizon has made tear-open granules packets available. Details available at http://bit.ly/37zXmY

read more

Little But Fierce

When it comes to Elle and cystinosis, “We continue to take each day dose by dose.” Hear more from...

read more

Global Genes: Rare Patient Advocacy Summit

On behalf of the cystinosis community, CRN advocates will attend this rare disease summit to absorb information on the...

read more

WBC Kits

A white blood cell (WBC) test helps monitor cystine levels important in managing cystinosis. Information about the test and...

read more

Canada Approval

Health Canada approved the first cysteamine eye drop solution to help people living with cystinosis. Read more…

read more