en English▼
X
ar Arabicbn Bengalizh-CN Chinese (Simplified)cs Czechda Danishnl Dutchen Englishtl Filipinofi Finnishfr Frenchde Germanel Greekht Haitian Creolehaw Hawaiianiw Hebrewhi Hindihu Hungarianid Indonesianit Italianja Japaneseko Koreanla Latinlt Lithuanianno Norwegianfa Persianpl Polishpt Portuguesepa Punjabiru Russiansr Serbiansk Slovaksl Slovenianes Spanishsw Swahilisv Swedishth Thaitr Turkishuk Ukrainianvi Vietnamesecy Welsh
For HCPs Donate

Tag: updates

Search
Generic filters
Exact matches only

2021 Family Conference

Mark your calendars for the 2021 CRN Family Conference!

read more

Cystinosis Gene Therapy & Research Updates: Virtual Meetup

Learn more about gene therapy as it relates to the cystinosis community. Dr. Paul Grimm from from Stanford University...

read more

Update: AVROBIO & COVID-19

A letter from Fernanda Copeland, Executive Director, Head Patient Advocacy & Engagement at AVROBIO March 24, 2020 We hope...

read more

Support

Let us help connect you with other individuals/families near you.

Learn More

News & Events

See what’s going on in the cystinosis community.

Read More

Donate

Your contribution funds research for improved treatments, and ultimately, a cure for cystinosis.

Donate