updates

New Slate Announced: CRN Board

The Cystinosis Research Network has announced new board member updates. At the last Board Meeting, the nominating committee proposed...

On March 8, 2021, the Cystinosis Research Network announced Tim Wyman as the new interim President. The position was...

An announcement from Horizon Therapeutics: With the growing dry ice shortage there has been an increased demand for NanoCool...

Learn more about gene therapy as it relates to the cystinosis community. Dr. Paul Grimm from from Stanford University...

Mark your calendars for the 2021 CRN Family Conference!

A letter from Fernanda Copeland, Executive Director, Head Patient Advocacy & Engagement at AVROBIO March 24, 2020 We hope...