The Cystinosis Research Network has announced new board member updates. At the last Board Meeting, the nominating committee proposed...
read moreOn March 8, 2021, the Cystinosis Research Network announced Tim Wyman as the new interim President. The position was...
read moreAn announcement from Horizon Therapeutics: With the growing dry ice shortage there has been an increased demand for NanoCool...
read moreLearn more about gene therapy as it relates to the cystinosis community. Dr. Paul Grimm from from Stanford University...
read moreA letter from Fernanda Copeland, Executive Director, Head Patient Advocacy & Engagement at AVROBIO March 24, 2020 We hope...
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