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2021 CRN Summer Online Conference

Mark your calendars for the 2021 CRN Family Conference!

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The CRN Welcomes Tim Wyman

On March 8, 2021, the Cystinosis Research Network announced Tim Wyman as the new interim President. The position was...

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Shortage Impacting WBC Testing Kits

An announcement from Horizon Therapeutics: With the growing dry ice shortage there has been an increased demand for NanoCool...

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Cystinosis Gene Therapy & Research Updates: Virtual Meetup

Learn more about gene therapy as it relates to the cystinosis community. Dr. Paul Grimm from from Stanford University...

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Update: AVROBIO & COVID-19

A letter from Fernanda Copeland, Executive Director, Head Patient Advocacy & Engagement at AVROBIO March 24, 2020 We hope...

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