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Recruiting for Health-Related Quality of Life Study

Cystinosis patients and caregivers are invited to participate in a study focused on measuring health-related quality of life (HrQoL)....

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Live Video Conference: Dependence, Education & Employment

Join the LIVE video conference session on May 2nd!

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Cystinosis Sessions: Coronavirus, Medication

Join the first video conference session created by the Adult Leadership Advisory Board - Saturday, March 21 at 4pm...

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Inspirational Stories

Our community is small but mighty! Hear about our triumphs.

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