Saturday, September 11th at 4:00pm ET, join the Adult Leadership Advisory Board (ALAB) for a Zoom discussion. TOPICS The...
read moreCystinosis Sessions: April Video Call All are invited to join as the Adult Leadership Advisory Board hosts a live...
read moreAll are invited to join as the Adult Leadership Advisory Board hosts a live video call on Saturday, March...
read moreLet’s have an open discussion on mental health and living with cystinosis. Everyone within the community is invited! Licensed...
read moreCystinosis Awareness Day is recognized as May 7th for the most commonly linked cystinosis mutation, the 57-kb deletion. This...
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