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Today (July 16) the first-ever, 100% online CRN Family Conference begins. Registration is still open so we invite you...
read moreThe CRN 2021 Family Conference is July 16 – July 18. In response to the COVID-19 pandemic, we’ve decided...
read moreThe Pediatric Academic Societies (PAS) connects thousands of pediatricians and other health care providers worldwide. This international gathering, delivered...
read moreOn the one year anniversary of Laura McGinnis’ passing, the Live Like Laura Fun Fund (LLLFF) was launched. Laura lived life...
read moreLearn more about gene therapy as it relates to the cystinosis community. Dr. Paul Grimm from from Stanford University...
read moreLet’s have an open discussion on mental health and living with cystinosis. Everyone within the community is invited! Licensed...
read moreIn April, the Cystinosis Network Europe adapted their international conference to the restrictions set forth by COVID-19. The result...
read moreLearn more about the fundamentals of cystinosis during our Cystinosis Basics video meetup. Dr. Larry Greenbaum, Emory School of...
read moreCaregivers of children with cystinosis under 18 years old are invited. Join us for a video conference to connect...
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