Founding ALAB member, Brian Ensor shares his first-hand experiences with the AstraZeneca Vaccination Study. Join the Zoom call Saturday,...
read moreOn Wednesday April 27, Leadiant Biosciences and AllianceRx Walgreens Prime invite the cystinosis community to attend a virtual Town...
read moreFebruary 28th marks the 12th annual Rare Disease Day (RDD). Observed on the rarest day of the year, the...
read moreToday (July 16) the first-ever, 100% online CRN Family Conference begins. Registration is still open so we invite you...
read moreThe CRN 2021 Family Conference is July 16 – July 18. In response to the COVID-19 pandemic, we’ve decided...
read moreThe Pediatric Academic Societies (PAS) connects thousands of pediatricians and other health care providers worldwide. This international gathering, delivered...
read moreOn the one year anniversary of Laura McGinnis’ passing, the Live Like Laura Fun Fund (LLLFF) was launched. Laura lived life...
read moreIn April, the Cystinosis Network Europe adapted their international conference to the restrictions set forth by COVID-19. The result...
read moreLearn more about gene therapy as it relates to the cystinosis community. Dr. Paul Grimm from from Stanford University...
read moreLet’s have an open discussion on mental health and living with cystinosis. Everyone within the community is invited! Licensed...
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