The Adult Leadership Advisory Board (ALAB) invites you to join the conversation on August 7th at 4pm ET. The...
read moreCystinosis Sessions: April Video Call All are invited to join as the Adult Leadership Advisory Board hosts a live...
read moreAll are invited to join as the Adult Leadership Advisory Board hosts a live video call on Saturday, March...
read moreThe goal of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on...
read moreSaturday, December 5th at 12:00 pm ET, the Adult Leadership Advisory Board (ALAB) will host a live video conference....
read moreThe forth live video conference hosted by the Adult Leadership Advisory Board (ALAB) will discuss Mental Health, Anxiety, Depression,...
read moreThe third live video conference takes place June 6 at 12:00 pm ET. The Adult Leadership Advisory Board (adults...
read moreAdvocating for rare disease sometimes feels like fighting an uphill battle. Living with cystinosis means you are 1 in...
read moreTune into the ALAB's Podcast series as we discuss how to cope with loss and grief.
read moreJoin the LIVE video conference session on May 2nd!
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