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X-WR-CALNAME:Cystinosis Research Network
X-ORIGINAL-URL:https://cystinosis.org
X-WR-CALDESC:Events for Cystinosis Research Network
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DTSTART:20180101T000000
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20190718
DTEND;VALUE=DATE:20190721
DTSTAMP:20190711T143440Z
CREATED:20190124T211427Z
LAST-MODIFIED:20190711T143440Z
UID:1144-1563408000-1563667199@cystinosis.org
SUMMARY:2019 CRN Family Conference
DESCRIPTION:Ring in the future with us at the 2019 Family Conference. The weekend is filled with research updates from clinicians and international cystinosis organizations\, opportunities to meet and renew friendships\, participate in studies\, and interact with expert health care professionals. Browse the draft agenda here. \nThe 2019 Family Conference is July 18 – 20\, 2019 at the Hilton Philadelphia at Penn’s Landing. The Hilton Philadelphia at Penn’s Landing is the only hotel on Philadelphia’s beautiful waterfront in the historic district. They offer an indoor pool\, lobby bar\, 24-hour coffee shop and waterfront dining at Keating’s Rope & Anchor\, Bar + Kitchen. Walk to Philadelphia attractions including the Liberty Bell\, Independence Hall\, Museum of the American Revolution and Blue Cross Riverrink Summerfest. For more information on the hotel please visit their website.
URL:https://cystinosis.org/event/2019-crn-family-conference/
LOCATION:Hilton at Penns Landing\, 201 South Christopher Columbus Blvd\, Philadelphia\, PA\, 19106
CATEGORIES:Gatherings/Conferences
ATTACH;FMTTYPE=image/jpeg:https://cystinosis.org/wp-content/uploads/2019/01/Design-41.jpeg
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20190311
DTEND;VALUE=DATE:20190313
DTSTAMP:20190228T172652Z
CREATED:20190125T185649Z
LAST-MODIFIED:20190228T172652Z
UID:1170-1552262400-1552435199@cystinosis.org
SUMMARY:Patient Congress
DESCRIPTION:The PAS Meeting brings together thousands of pediatricians and other health care providers united by a common mission: improve the health and well-being of children worldwide. \nThe Patient Congress is focused on incorporating the patient voice across the entire product lifecycle. Through three tailored tracks\, examine the pieces integral to the patient journey of both small and large patient populations including patient access\, adherence\, and advocacy. With more than 250+ industry leaders representing life sciences companies\, pharmacies\, health plans\, provider organizations\, patient groups\, and patient leaders\, join the conversation around innovative and collaborative ways we can improve access and health outcomes for patients. Develop your organization’s patient-centric strategy from drug development through commercialization\, break down internal silos\, and improve patients’ lives across the entire continuum of care. \n  \nEVENT INFORMATION \n\nRegister here\nLearn about the Patient Advocacy track\nTake part in raising education and awareness about cystinosis. Contact Aimee to get started adelmann.aimee@gmail.com.
URL:https://cystinosis.org/event/patient-congress-2/
LOCATION:Hilton at Penns Landing\, 201 South Christopher Columbus Blvd\, Philadelphia\, PA\, 19106
ATTACH;FMTTYPE=image/jpeg:https://cystinosis.org/wp-content/uploads/2019/01/Design-35.jpeg
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