Dialysis & Transplant

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For most people living with nephropathic cystinosis, dialysis and kidney transplant seem to be inevitable. To help you through this process, we’ve compiled resources to help answer your questions. The cystinosis community is small but incredibly helpful. If you have specific questions and/or would like to be paired up with someone who has experienced dialysis/kidney transplant first-hand, please email info@cystinosis.org. Click on a topic below to jump to that section.

Overview: Chronic Kidney Disease
Resources for your Healthcare team

Medicare and ESRD/Dialysis


Donor Matching/Options

Financial Planning and Considerations

Care During and After Transplant

COVID-19 and Transplant

Children and Kidney Transplants

Specifically curated for children and parents of children with transplants, below you’ll find video testimonies from adults with transplants, activities for children with transplants, and resources which may provide support through the transplant process.