Care Package Program

The Care Package Program was created to help individuals and families with cystinosis during trying times. We will send a personalized package with educational materials and supportive tools based on your point within the cystinosis journey. To sign up for a complimentary package, complete the form below.

Who is the care package for?*

Myself (living with cystinosis)
My child (living with cystinosis)
A cystinosis family member
A friend living with cystinosis

Select your/their point in the journey:*

Newly diagnosed with cystinosis (within the last year)
Kidney transplant (available for those actively listed/awaiting transplant)
Wellness kit/mental wellness package needed
End stage/bereavement (recent loss of a loved one with cystinosis)

Transplant/anticipated transplant date*

Tell us about your or your friend/family member’s story with cystinosis:*

Name of Recipient*

First Last

Email*

Address*

Street Address Address Line 2 City State ZIP / Postal Code Country

Your information (if different from recipient):

Name

First Last

Email

If requesting a care package be sent to a hospital, please allow up to 10 days for delivery. The CRN reserves the right to validate applications prior to fulfillment. Individuals/families can apply to receive a maximum of one care package a year. If you have questions, email info@cystinosis.org.

Care Package Program

Care Package Program

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