Care Package Program

The Care Package Program was created to help individuals and families with cystinosis during trying times. We will send a personalized package with educational materials and supportive tools based on your point within the cystinosis journey. To sign up for your complimentary package, complete the form below.

Who is the care package for?*

Myself (living with cystinosis)
My child (living with cystinosis)
A cystinosis family member
A friend living with cystinosis

Select your/their point in the journey:*

Newly diagnosed with cystinosis (within the last year)
Kidney transplant (available for those actively listed/awaiting transplant)
End stage/bereavement (recent loss of a loved one with cystinosis)

Transplant/anticipated transplant date*

Tell us about your or your friend/family member’s story with cystinosis:*

Name of Recipient*

First Last

Email*

Address*

Street Address Address Line 2 City State

Your information (if different from recipient):

Name

First Last

Email

If requesting a care package be sent to a hospital, please allow up to 10 days for delivery. The CRN reserves the right to validate applications prior to fulfillment. Individuals/families can apply to receive a maximum of one care package a year. If you have questions, email info@cystinosis.org.

Care Package Program

Care Package Program

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