Cystinosis Memorial Fund

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The Cystinosis Memorial Fund (CMF) is established to support teens and adults living with cystinosis while honoring the warriors who have lost their battle. Our goal is to instill added confidence and improve the skills and abilities of recipients in our community to flourish and fulfill their talents and potential.

With the ever evolving technology in mind, the Cystinosis Memorial Fund will provide a stipend to those living with cystinosis of up to $1,000 USD per awardee. The stipend may cover career and technology-focused services/goods including, but not limited to:  

  • Software to help with academics/career development
  • Training/workshops/webinars
  • Career coaching (cover letter/interview skills and job searching)
  • Tutoring 
  • Resume creation/recruitment services 
  • Misc. professional/academics and career development opportunities, certifications, etc. 
  • If you require assistance obtaining a computer and/or internet access, please contact Jonathan Dicks and PCs for People. NOTE: If you reside outside of the U.S. we will consider covering these items under the CMF fund 

Once awarded, you will be ineligible to reapply for the Cystinosis Memorial Fund for 18 months after receiving the funds.

Cystinosis Memorial Fund Application

  • MM slash DD slash YYYY
  • (Please calculate total amount of programming/services you acquired/will be acquiring)
  • Max. file size: 2 GB.
  • Hidden
    (old field, now hidden)
  • PLEASE NOTE: Recipients of the CMF will be required to submit all legible receipts for programming and services rendered. All applications will be reviewed within 4-6 weeks of submission. A CMF committee will determine awardees and notices will be sent out quarterly. CRN will be responsible for the distribution of funds (up to $1,000 USD per awardee) based on the need specified in this application. For questions, email megan.e.morrill@gmail.com or kgledhill@rochester.rr.com.
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