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An announcement from Horizon Therapeutics: With the growing dry ice shortage there has been an increased demand for NanoCool...
Read moreBy Cystinosis Research Network
January 9, 2021
Children’s Friend Inc. is studying the experiences in and barriers to accessing mental health services for families. For the...
Read moreBy Cystinosis Research Network
December 21, 2020
Members of the CRN’s Medical Advisory Board and Scientific Advisory Board weighed in on their thoughts regarding the COVID-19...
Read moreBy Cystinosis Research Network
December 16, 2020
Now more than ever, our world relies on technology to stay connected. The Cystinosis Research Network (CRN) has partnered...
Read moreNovember 17, 2020 – AVROBIO announced that data suggests functional and clinical improvements for the first cystinosis patient at...
Read moreAs of today, November 12th, AllianceRx Walgreens Prime is unable to fulfill any orders of CYSTARAN. Leadiant’s full announcement...
Read moreRecordati Rare Diseases Inc., the makers of CYSTADROPS, launched a website to support the launch of the eye treatment...
Read moreIn a statement from Leadient Biosciences on October 9th, the company announced an availability shortage may impact cystinosis patients...
Read moreIn April, the Cystinosis Network Europe adapted their international conference to the restrictions set forth by COVID-19. The result...
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