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Today (July 16) the first-ever, 100% online CRN Family Conference begins. Registration is still open so we invite you...
Read moreBy Cystinosis Research Network
July 16, 2021
Please click here for the latest updates from Leadiant on the Cystadrops shortage. If you have further questions, please...
Read moreBy Cystinosis Research Network
May 24, 2021
Interim CRN President, Tim Wyman, has written an open letter to the cystinosis community. You can read it here.
Read moreBy Cystinosis Research Network
May 12, 2021
The CRN 2021 Family Conference is July 16 – July 18. In response to the COVID-19 pandemic, we’ve decided...
Read moreIn the late 1970’s, a hospitalization led to a cystinosis diagnosis which was uncommon at the time. Karen, and...
Read moreIn honor of Cystinosis Awareness Day – May 7 – Leadiant Biosciences is commemorating this event with a letter...
Read moreAngel Aid is currently providing free trauma-less needle poke wellness kits for the cystinosis community. Their “Buzzy” kits were...
Read moreOn March 8, 2021, the Cystinosis Research Network announced Tim Wyman as the new interim President. The position was...
Read moreCystinosis Ireland and the CRN are delighted to announce they will jointly fund research project entitled “Perturbations in the...
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