English▼
The Adult Leadership Advisory Board (ALAB) created custom designed bandanas for your furry friends. Your donation provides support for...
Read moreBy Cystinosis Research Network
December 23, 2022
After four years without an in person meeting, we invite you to strap on your boots for a trip...
Read moreBy Cystinosis Research Network
December 23, 2022
Cystinosis patients and caregivers are invited to participate in a study focused on measuring health-related quality of life (HrQoL)....
Read moreBy Cystinosis Research Network
December 14, 2022
Men 18+ living with nephropathic cystinosis are currently being recruited for a research study, Clinical and Molecular Assessments of...
Read moreThe Cystinosis Research Network announces the expansion of our Board with two new Directors. Their experience, perspectives and dedication...
Read moreSan Miguel de Allende, Mexico was the setting for Cystinosis Mexico’s training course August 26 – 28. Nephrologists, ophthalmologists...
Read moreThe organization of the 3rd Cystinosis Network Europe (CNE) International Cystinosis Conference would like to offer all interested parties...
Read moreThis past winter we lost a revolutionary in the cystinosis world, Dr. Jerry Schneider. During his time at the...
Read morePress release originally published May 17, 2022 on Avrobio.com. New early data show key visual motor integration, visual perception...
Read more
