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Partnering with RDMD, this program aims to accelerate cystinosis research to ultimately improve treatment options. We welcome you to...
Read moreBy Cystinosis Research Network
July 9, 2020
We are pleased to announce a collaboration between the Cystinosis Research Network (CRN) and Cystinosis Ireland to fund a...
Read moreBy Cystinosis Research Network
July 8, 2020
AVROBIO announces the second patient with cystinosis has been dosed in the company’s AVR-RD-04 investigational gene therapy Phase 1/2...
Read moreBy Cystinosis Research Network
July 6, 2020
On Thursday, July 2nd, the CRN announced a face mask fundraiser to help create awareness, bring in donations and...
Read moreIn the third episode of “Cystinosis Sessions,” a live video conference series created by adults living with cystinosis, topics...
Read moreThe Rare Diseases Clinical Research Network (RDCRN) is hoping to learn how the COVID-19 pandemic impacts people who live...
Read moreWith critical support from CRN, Drs. Foxe, Molholm, and Francisco from the Cognitive Neurophysiology Laboratory (CNL) in New York...
Read moreAdvocating for rare disease sometimes feels like fighting an uphill battle. Living with cystinosis means you are 1 in...
Read moreProcysbi is now available for U.S. patients with cystinosis in microbead packets. You can find more information along with...
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