The Cystinosis Research Network is sharing the following research opportunity from Beacon Consulting Group, which is seeking input from...
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August 14, 2026
This fall the Cystinosis Research Network will bring together researchers, scientists, industry professionals, and others interested in advancing cystinosis...
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August 14, 2026
In a community statement issued by Novartis on July 24, 2026: Dear Cystinosis Community, We are pleased to share...
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July 24, 2026
A newly approved eye drop solution will expand treatment options for people living with cystinosis in Canada. Targeting corneal...
Read moreThe Cystinosis Research Network (CRN) is pleased to welcome two newly appointed leaders whose professional expertise, lived experience, and...
Read moreNews from Leadiant regarding new storage of Cystaran (cysteamine ophthalmic solution) 0.44%. Beginning December 22, 2025, shipments of Cystaran...
Read moreThe next phase of clinical development for the CF10 prodrug to treat cystinosis has been announced. The Cystinosis Foundation...
Read moreThe Neuromuscular Clinic at Massachusetts General Hospital (MGH) led by Dr. Reza Seyedsadjadi, is currently enrolling participants for a...
Read moreEmory University in Atlanta, Georgia, is actively recruiting for the Cohort 0 control groupin the CYStem clinical trial. While...
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