English▼
Angel Aid is currently providing free trauma-less needle poke wellness kits for the cystinosis community. Their “Buzzy” kits were...
Read moreBy Cystinosis Research Network
March 9, 2021
On March 8, 2021, the Cystinosis Research Network announced Tim Wyman as the new interim President. The position was...
Read moreBy Cystinosis Research Network
March 8, 2021
Cystinosis Ireland and the CRN are delighted to announce they will jointly fund research project entitled “Perturbations in the...
Read moreBy Cystinosis Research Network
February 27, 2021
February 12, 2021Dear Cystinosis Community: We wanted to share an update from Leadiant Biosciences regarding the CYSTARAN® (cysteamine ophthalmic...
Read moreIn Honor of Laura’s 35th Birthday and Rare Disease Day. An article by Marybeth Krummenacker I was trying to...
Read moreOn February 3, 2021, Leadiant and the Cystinosis Research Network held a Town Hall to address the CYSTARAN eye...
Read moreAVROBIO Announces 100% Kidney Substrate Reduction at 12 Months Post-Gene Therapy in...
Read moreThanks in part to volunteers at both the 2017 and 2019 CRN Family Conferences, this study was able to...
Read moreAn announcement from Horizon Therapeutics: With the growing dry ice shortage there has been an increased demand for NanoCool...
Read more
