Leadership

The Cystinosis Research Network is comprised of volunteers representing every aspect of the cystinosis community. Our Board of Directors is made up of parents and individuals with cystinosis who are dedicated to making a difference in the lives of those affected by this disease. Committee volunteers include parents, siblings, individuals with cystinosis, extended family and friends.

Please reach out, we are here to help!

Board of Directors

Jonathan Dicks, Ohio

President, Vice President Development

Christy Greeley, Illinois

Vice President of Research, Executive Director

Jen Wyman, Michigan

Vice President Family Support

Marybeth Krummenacker, New York

Vice President Education and Awareness

Tim Wyman, Michigan

Treasurer

Karen Gledhill, New York

Secretary

Directors

Carol Hughes, Florida
Chelsea Meschke, Michigan
Megan Morrill, Michigan
Gail Potts, South Carolina
Kristina Sevel, Ohio
Herberth Siegler, New York

Adult Patient Representative

Sara Healy, Minnesota

Members of the CRN Scientific Review Board and Medical Advisory Committee are world experts in all aspects of cystinosis. Their dedication to this community in invaluable.