Leadership

The Cystinosis Research Network is comprised of volunteers representing every aspect of the cystinosis community. Our Board of Directors is made up of parents and individuals with cystinosis who are dedicated to making a difference in the lives of those affected by this disease. Committee volunteers include parents, siblings, individuals with cystinosis, extended family and friends.

Please reach out, we are here to help!

Board of Directors

Jen Sexstone, Ohio

Treasurer

Ina Gardener, Ohio

Secretary

Christy Greeley, Illinois

Vice President of Research, Executive Director

Jen Wyman, Michigan

Vice President Family Support

Marybeth Krummenacker, New York

Vice President Education and Awareness

Jonathan Dicks, Ohio

Vice President Development

Clinton Moore, Delaware

President

Adult Patient Representative

Cheryl Simoens, Manitoba

DIRECTORS

Andrea Carr, New York
Carol Hughes, Florida
John Maccarone, New York
Jennifer Loglisci, Massachusetts
Larry Thomas, New York
Anna Pruitt, Colorado
Gail Potts, South Carolina
Herberth Siegler, New York

Kirsten Stilke, Wisconsin
Melanie Vachon, Kansas
Tim Wyman, Michigan

Members of the CRN Scientific Review Board and Medical Advisory Committee are world experts in all aspects of cystinosis. Their dedication to this community in invaluable.