The Cystinosis Research Network is comprised of volunteers representing every aspect of the cystinosis community. Our Board of Directors is made up of parents and individuals with cystinosis who are dedicated to making a difference in the lives of those affected by this disease. Committee volunteers include parents, siblings, individuals with cystinosis, extended family and friends.
Please reach out, we are here to help!
Board of Directors
Tim Wyman, Michigan
Interim President
Jen Sexstone, Ohio
Treasurer
Ina Gardener, Ohio
Secretary
Christy Greeley, Illinois
Vice President of Research, Executive Director
Jen Wyman, Michigan
Vice President Family Support
Marybeth Krummenacker, New York
Vice President Education and Awareness
Jonathan Dicks, Ohio
Vice President Development
DIRECTORS
Andrea Carr, New York
Carol Hughes, Florida
John Maccarone, New York
Gail Potts, South Carolina
Herberth Siegler, New York
Melanie Vachon, Kansas
Members of the CRN Scientific Review Board and Medical Advisory Committee are world experts in all aspects of cystinosis. Their dedication to this community in invaluable.
Scientific Review Board Chairperson
William A. Gahl, M.D., Ph.D.
Scientific Review Board Chairperson
Scientific Review Board Membership
Roslyn B. Mannon, M.D.
Robert Kleta, MD, PhD, FASN, FACMG
Jess G. Thoene, M.D.
Craig B. Langman, M.D.
Frederick Kaskel, M.D., Ph.D.
Medical Advisory Committee
Galina Nesterova, MD,FABMG
Patrick Gipson, M.D.
Ranjan Dohil, M.D.
Rachel Bishop, MD, MPH
Paul Goodyer, M.D.
Minnie Sarwal, M.D.
Mihir M. Thacker, M.D.
Laurence Greenbaum, M.D., Ph.D.
Julie R. Ingelfinger, M.D.
Ewa Elenberg, M.D.
Doris A. Trauner, M.D.
Donald Cairns, Ph.D.
Corinne Antignac, M.D., Ph.D.
Joshua J Zaritsky, MD, PHD
Professional Advisory Committee
Maya Doyle, MSW, PhD, LCSW-R