The Cystinosis Research Network is comprised of volunteers representing every aspect of the cystinosis community. Our Board of Directors is made up of parents and individuals with cystinosis who are dedicated to making a difference in the lives of those affected by this disease. Committee volunteers include parents, siblings, individuals with cystinosis, extended family and friends.
Please reach out, we are here to help!
Board of Directors
Kristina Sevel, Ohio
Vice President Research
Chelsea Meschke, Michigan
Vice President Family Support
Jonathan Dicks, Ohio
President and Vice President Development
Marybeth Krummenacker, New York
Vice President Education and Awareness
Tim Wyman, Michigan
Karen Gledhill, New York
Clair Johnstone, New Jersey
Carol Hughes, Florida Megan Morrill, Michigan Gail Potts, South Carolina Heather Rothrock, North Carolina Terri Schleuder, Michigan Herberth Sigler, New York Jen Wyman, Michigan