The Cystinosis Research Network is comprised of volunteers representing every aspect of the cystinosis community. Our Board of Directors is made up of parents and individuals with cystinosis who are dedicated to making a difference in the lives of those affected by this disease. Committee volunteers include parents, siblings, individuals with cystinosis, extended family and friends.
Please reach out, we are here to help!
Board of Directors
Jonathan Dicks, Ohio
President, Vice President Development
Christy Greeley, Illinois
Vice President of Research, Executive Director
Jen Wyman, Michigan
Vice President Family Support
Marybeth Krummenacker, New York
Vice President Education and Awareness
Tim Wyman, Michigan
Treasurer
Karen Gledhill, New York
Secretary
Directors
Carol Hughes, Florida
Gail Potts, South Carolina
Kristina Sevel, Ohio
Herberth Siegler, New York
Adult Patient Representative
Sara Healy, Minnesota
Members of the CRN Scientific Review Board and Medical Advisory Committee are world experts in all aspects of cystinosis. Their dedication to this community in invaluable.
Scientific Review Board Chairperson
William A. Gahl, M.D., Ph.D.
Scientific Review Board Chairperson
Scientific Review Board Membership
Roslyn B. Mannon, M.D.
Robert Kleta, MD, PhD, FASN, FACMG
Jess G. Thoene, M.D.
Craig B. Langman, M.D.
Frederick Kaskel, M.D., Ph.D.
Medical Advisory Committee
Galina Nesterova, MD,FABMG
Patrick Gipson, M.D.
Ranjan Dohil, M.D.
Rachel Bishop, MD, MPH
Paul Goodyer, M.D.
Minnie Sarwal, M.D.
Mihir M. Thacker, M.D.
Laurence Greenbaum, M.D., Ph.D.
Julie R. Ingelfinger, M.D.
Ewa Elenberg, M.D.
Doris A. Trauner, M.D.
Donald Cairns, Ph.D.
Corinne Antignac, M.D., Ph.D.
Joshua J Zaritsky, MD, PHD
Professional Advisory Committee
Maya Doyle, MSW, PhD, LCSW-R