The Cystinosis Research Network is comprised of volunteers representing every aspect of the cystinosis community. Our Board of Directors is made up of parents and individuals with cystinosis who are dedicated to making a difference in the lives of those affected by this disease. Committee volunteers include parents, siblings, individuals with cystinosis, extended family and friends.
Please reach out, we are here to help!
Board of Directors
Executive Director
Clair Johnstone, New Jersey
Directors
Carol Hughes, Florida
Megan Morrill, Michigan
Gail Potts, South Carolina
Heather Rothrock, North Carolina
Terri Schleuder, Michigan
Herberth Sigler, New York
Jen Wyman, Michigan
Adult Leadership Advisory Board (ALAB) Representative
Jana Healy, Minnesota
Members of the CRN Scientific Review Board and Medical Advisory Committee are world experts in all aspects of cystinosis. Their dedication to this community in invaluable.
Scientific Review Board Chairperson


Scientific Review Board Membership










Medical Advisory Committee


























Professional Advisory Committee

