The Beat Goes On – 2021 Family Conference
Our biennial summer conference took place July 16 – 18, 2021. It was provided 100% online and free of charge.
The shift from an in-person event to an online conference series allowed us to continue to providing an educational, supportive, and engaging experience in spite of the challenges encountered during the COVID-19 pandemic.
With the help of our global cystinosis community (25+ countries), our first virtual conference was a great success.
We hope you will join us in person in Nashville, Tennessee in July 2023.
A Look Back – 2019 Family Conference
Individuals, families, world expert clinicians, and industry partners came together this summer to help our cystinosis community “Ring in the Future”. The city of Philadelphia welcomed:
- 80 people living with cystinosis
- 9 different countries
- 275 overall attendees
Families experienced a weekend filled with critical research updates from clinicians and international cystinosis organizations, opportunities for study participation, interaction with health care professionals, and a chance to meet old friends and make new connections. For those unable to attend, the live streamed sessions are now accessible on the CRN YouTube channel.