August cystinosis Zoom call discussions will be shaped by your questions and priorities. Chelsea Meschke, VP of Family Support, is our host on August 11 at 8p ET / 7p CT / 5p PT. Use this direct link to join the meeting: https://tinyurl.com/mw2437j2
Join us in the heart of Uptown Charlotte. CRN Family Conferences draw some of the largest gatherings of cystinosis families in the world. The weekend-long agenda creates a space for connection, learning, and shared experience for each member of the family. Save the dates! To stay informed about registration, scholarships, and updates, email info@cystinosis.org or […]