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August 2021

Cystinosis Sessions: August Video Call

August 7 @ 4:00 pm - 5:00 pm

The Adult Leadership Advisory Board (ALAB) invites you to join the conversation on August 7th at 4pm ET. The video call with be hosted via Zoom. TOPICS ALAB members will lead a discussion about the CRN Virtual Conference (held July 16-18, 2021). To join, click: https://zoom.us/j/2663523786 Meeting ID: 266 352 3786 Here are instructions to help with downloading Zoom. We recommend completing these steps prior to the call. Secure access to a mobile device (PC, Apple, Android), desktop or laptop computer…

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CRN Golf Tournament: Myrtle Beach

August 14 @ 9:00 am - 2:45 pm
Myrtle Beach National Golf Club, 4900 National Drive
Myrtle Beach, SC 29779 United States
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The Myrtle Beach National Golf Club and Gail Potts are hosting a golf tournament benefitting the Cystinosis Research Network on Saturday, August 14th. Click here to register today or make a donation through this website.

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