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June 2022

2nd Annual SC Golf Fundraiser

June 18 @ 9:00 am - 2:00 pm
Wild Wing Avocet Golf Course, 1000 Wild Wing Boulevard
Conway, South Carolina 29526
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Gail Potts and her South Carolina team are back at it! After a successful inaugural event last summer, Gail continues to honor her daughter Deanna’s legacy with a golf fundraiser to benefit the Cystinosis Research Network (CRN). Proceeds from the event will support research, family support and education for those impacted by cystinosis.    This year’s golf outing takes place on June 18 at Wild Wing Avocet Golf Course and includes a barbecue lunch. $260 per team or $65 per…

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July 2022

CNE International Conference

July 7 - July 10
MTC1 Maria-Theresiacollege, Sint-Michielsstraat 6
3000 Leuven, Belgium

This summer, Cystinosis Network Europe (CNE) will host an International Conference July 7-10 in Leuven, Belgium. The conference will be segmented into a scientific meeting on July 7 with the family conference running July 8-10. Access details here including: Conference website Registration page Hotel and lodging info Session details click here Questions? Email cystinose@ziggo.nl Call for abstracts! During the family conference, a poster session for young researchers will be held, which is intended to inform families and those living with…

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