Special Programming

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The Cystinosis Research Network is proud to present original programming created for our community, by our community.

Learn more about each opportunity by clicking the links below.

  • Live Like Laura Fun Fund. Need help funding your next adventure? If you are living with cystinosis or have a sibling with cystinosis, the Live Like Laura Fun Fund may be able to help!  
  • Cystinosis Memorial Fund. In memory of the cystinosis warriors who have lost their battle, this program provides financing for technology and career support for teens/adults with cystinosis. 
  • Care Package Program. If you know a cystinosis individual or family in need of a pick-me-up, we will send a complimentary support/educational package their way.

If you have any questions, email info@cystinosis.org.

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