The Cystinosis Research Network is proud to present original programming created for our community, by our community.
Learn more about each opportunity by clicking the links below.
- Live Like Laura Fun Fund. Need help funding your next adventure? If you are living with cystinosis or have a sibling with cystinosis, the Live Like Laura Fun Fund may be able to help!
- Cystinosis Memorial Fund. In memory of the cystinosis warriors who have lost their battle, this program provides financing for technology and career support for teens/adults with cystinosis.
Looking for the Care Package Program? That resource is currently on hold. If you are still interested in sending a package, please email us at firstname.lastname@example.org.