Newly Diagnosed

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Receiving a cystinosis diagnosis can be overwhelming.

We are here to help.

For some, that means hearing from others with first-hand experience like our caregivers and individuals living with cystinosis. For others, it’s getting paired with a cystinosis expert who can provide state-of-the-art treatment information. Or maybe you’ve come in search of informational resources. Either way, welcome to our small but mighty community.

Meet Chelsea Meschke, a cystinosis caregiver and CRNs Vice President of CRN Family Support. Email to connect with her today.

Chelesea Meschke