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A major focus of the Cystinosis Research Network is to secure a promising future for the cystinosis community through the support and funding of research grants that lead to improved treatments and ultimately a cure for cystinosis.

CRN has funded $5.5 million total in research grants and fellowships including:

  • A cystinosis fellowship at the National Institutes of Health (NIH)
  • Global research and education programs (U.S., Mexico, England, Scotland, Italy, Egypt,Belgium, France, to name a few)
  • Research studies focusing on each aspect of cystinosis to form a comprehensive understanding of the disease
    • Neurological
    • Genetic
    • Ophthalmological
    • Gastrointestinal
    • Muscular
    • Nephrology
    • Pulmonary
    • Skin/dermatological
    • Psychological
    • Medication improvement and much more

For a deeper dive into our research funding, visit Research Updates.