AVROBIO is looking for perspectives from the cystinosis community. They will be conducting a small focus group to help understand cystinosis symptoms beyond the eye and kidney. The experiences provided will help guide primary, secondary and tertiary endpoints in future AVROBIO clinical trial(s).
This is a one hour, virtual focus group and compensation is available. If you or your loved one is newly diagnosed (younger child), a teen living with cystinosis or an adult living with cystinosis, please email info@cystinosis.org for details.
Thank you for considering this opportunity to further research, improve treatments and finding a cure for cystinosis.