The Cystinosis Research Network announces the expansion of our Board with two new Directors. Their experience, perspectives and dedication to improving life with cystinosis make them ideal candidates. Please join us in welcoming Chelsea Meschke and Megan Morrill.
For more information about CRN leadership, Scientific Review Board Members and more, click here.
'I’ve always loved being an advocate for people, and joining the CRN I get to help families and kids just like my own, and be an advocate for them. I really can’t wait to work with the organization to bring education on this disease to the communities, support opportunities to families and patients, all while raising awareness and funds to fight for a cure.' - Chelsea
'I joined the CRN board to advocate for the cystinosis community and have a more active role in programs and research. I hope to use my career and life experience to promote health and well being of the rare disease population, along with creating meaningful connections with adults and families that have been impacted by cystinosis!' - Megan