2020 Cystinosis Awareness Giveaway

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Rare Disease Day is Saturday, February 29th.

You can now spread awareness for our rare disease year-round with this phone wallet! Pictured below, the cystinosis awareness ribbon has been customized to stand out against a bright green background. Attach this to the back of your device and let your phone “wear your rare.”

With each free order placed, we hope to spark conversations about cystinosis.

The phone wallet is complimentary but we do encourage you to share your rare. Here’s how:

  • Take a photo with your new phone wallet
  • Upload to social media with #mycystinosis, tagging the Cystinosis Research Network -or- email to info@cystinosis.com
  • Share one thing about cystinosis/your experience

Did you know? The original cystinosis awareness ribbon was 12 foot (3.66m) tall. It was thoughtfully created containing 2,000 interior lights, one light for each person living with cystinosis. The ribbon was outlined in a contrasting color to represent those who have passed but remain part of who we are today.

A symbol of strength, solidarity, and support, the cystinosis ribbon continues to evolve much like the inspirational individuals living with this disease. We look forward to seeing the phone wallets travel the globe spreading awareness, education, and love for our cystinosis warriors.

I’d like a free cystinosis phone wallet!
Please complete the form below. We ship internationally. If you have questions, email info@cystinosis.org.

There are more great ways to get involved. Find out more.

NOTE: Depending on location and date of request, cystinosis phone wallets may not be received by February 29, 2020.